My mother had a massive stroke four years ago , she died a year ago last June , just days after her birthday…. I found myself sending flowers for her birthday and within moments a wreath for her funeral.
I, too sick to attend her funeral in England…, friends arranged a small service in our local Church here in Spain for me to say good-bye to my mother….not quite the same as kissing her for the last time on the cheek…but…the best I could do… I had not seen my mum for almost a year, although I could speak to her by phone she could not answer because the stroke had left her without speech. The one saving grace , my mother never knew I had cancer….had she been healthy I would have wanted to cry in her arms…the one person we need the most when life turns sour is our mother..
I remembered today the spite and cruelty from a forum named Sang Froid…..about my mothers illness, a woman they had never met, made fun of in the cruellest of ways….because her daughter did not believe in FAIRY TALES..I did not visit the site but there are always those ‘ever helpful’ who like to send you a copy of what has been said.
We seem to be in a state of ‘deja vù’ but remember it is not only me you attack, but every single person who has cancer. Apart from your belief in FAIRY TALES what kind of people are you?
To continue.
During the time before I was diagnosed with Cancer, I would travel on a regular basis to visit with my mother. I would act the clown and do everything I could to make her laugh.
I cannot remember how I came to hear of Professor Ralph Clauss or his findings in how the Sleeping drug ZOLPIDEM helped stroke victims…I am only glad that I found him. Professor Clauss works in the Nuclear Department at the Royal Surrey County Hospital in GUILFORD. (For more information I have left a link in the sidebar)
My mother, as a stroke victim, was as bad as it could get, she could not walk or talk and was double incontinent.
One day I telephoned Professor Clauss out of desperation, never for one moment thinking it would be he himself who would answer the phone. I explained through tears and much grief about my mother and how I had heard about him and ZOLPIDEM although I could not remember where or how….A gentle man with a gentle voice told me to calm down so he may ask me some questions. First , before we could even think of trying ZOLPIDEM we must wait six months for the swelling to subside in the brain…luck was on our side six months had passed…Second we must have permission from my mothers GP….BIG sticking point my mothers GP refused, I phoned, I e.mailed, I begged…finally after Professor Clauss wrote to my mothers GP and told of his findings he agreed.
My sister terrified, I also though trying to put on a brave face gave my mother her first tablet of ZOLPIDEM….we waited and we waited…if there was to be any reaction you should see some change within 30 minutes. Nothing. Tears of disappointment stung my eyes, when suddenly my sister said’ Dan LOOK’…I turned to see my mother rosie cheeked her crooked smile had straightened up and she was sitting up in bed looking like her old self. We both said to her mum, mum and her eyes looked at us as though she had done something very clever…my sister and I jumping up and down like a couple of two year olds. The down side, the effect of ZOLPIDEM only lasts a matter of hours and the patient returns to their normal state.But for a few precious hours you may have your family member back as you knew them.( It is important to give the recommended dose the SAME time each day )
NOT everyone will have a reaction to ZOLPIDEM for some there will be no difference at all, but one thing I can say if you have a family member who has suffered a stroke ZOLPIDEM is worth a try.
NOTE:
Professor Ralph Clauss has written books on his findings with ZOLPIDEM you can look him up on the INTERNET.
http://www.consumer.es/web/es/salud/investigacion_medica/2006/09/29/155948.php
Article also in Spanish.
Dear: You are really very special. A brave heart, a brave woman.
Lovely words about those Family moments.
” We both said to her mum, mum and her eyes looked at us as though she had done something very clever…my sister and I jumping up and down like a couple of two year olds.”
and, of course, i can understand also:
” I would have wanted to cry in her arms…the one person we need the most when life turns sour is our mother…”
and ( i must copy and paste. You know ….. my notenglish)
” I would travel on a regular basis to visit with my mother. I would act the clown and do everything I could to make her laugh.”
You are lovely,My Dear Girl !
Today, no river. xxs
I send an e-mail If You can understand what i write with emoticons………. You can laugh
Thank-you Maria and I shall take your strength with me tomorrow xx
http://headlines-today.co.uk/2010/09/11/sleepy-time/
Thank-you Bren xx
Hello,My Friend, hello!
Only now i could come here.
xssssss+ hug
Domestic Assistant ‘s day…. so, only now.
xxs+hug , My Dearest Girl.
Sorry to hear you are in hospital my friend, get well enough to be back here with us Dani, where you belong. Sending you big hugs to both you and Stephan xxx
Wishing you a speedy recovery. xx
I hope, sleeping, out of home You can sleep and be better.
To You and B. , my love.
Thinking about You both: D.+B.
M
xxs and hug
Hope you are feeling better today Dani, both of you are in my thoughts, get well soon my friend xx
Big hugs being sent to both of you.
@ Maria, Hi Maria hope you are well xx
My heart with You both, D and B.!
xxs
With thanks for all the good vibes . As you know I am monitoring Dani’s blog and all movement on her blog is with the G.C.
I will pass on all your good wishes to her and hope to have her home very soon.
Cheers
Stephan
Good Morning Stephan,
Glad to hear that she could be home soon. Love to you both xx
Bren
xx
Hello,Friends,hello!
I am very glad that You,S. are monitoring the blog. Very good choice!A nice decision! Well done!
To our D. ,our Power : the best. I wish, where she is, at least can sleep and think only the good ones.
To You, S. all teh best also.
To You, both, i am here always!
xxs and hug
The best!
Good morning, 2 You 2 and Your ‘s Friends !
My love to both.
xxss and a hug.
http://www.mojvideo.com/video-elton-john-blessed/9717ab2f870200854042
A nice night to You both, D. and B.
Always with You,
xxs hug
Always with You both on my heart and in my toughts.
xxs+hug.
I am here. Always.
xxs+hug.
Good morning. I am here,always.
xxs+hug
Good Morning, how is Dani? Thinking of you both and sending you both all my love.xx
Bom, dia Bibi, o excelente e muito amado Marido de Dani. É como a conheço.
Sei que a Sua Mulher gosta de mim e do XXXXX, já que somos realmente Seus Amigos e é com a doença dela e com todos os dissabores que nos preocupamos.
Tomou esta decisão em prol do bem estar da Sua Mulher.
Sofremos aqui também pelo estado dela e por nada sabermos por ela própria.
Compreendo também que pretenda afastar da net……. o que se passou foi mesmo muito mau.Sim! Foi!
Eu tenho 62 anos de idade; sou pensionista da Caixa Geral de Aposentações e, sim, lidei com Pessoas com cancro , as quais acompanhei pessoalmente:
a Minha Mãe e o Meu Amigo.
A ele acompanhei durante um mês e meio, a Seu pedido, todos os dias.
Sei o que a Minha Mãe passou. Estive com Ela durante 1 ano e meio …….
terrible for those suffering from psychological and emotional, is not it?
violência psicológica
http://mariacpois.blogspot.com/2010/09/
My Dearest Girl:
May your smile remains. I expect you to read this. You!
xxs,D.
Hello,My Sweet Punky Girl: keep the smile and humor.
A nice day,My Friend.
xxs+hug
I know i am talking alone. But are my toughts to You,Dani.
xxs
I’m unsure if this helps, but it’s intended to. Primary cancer is named by the area of the body it is located in, and that name remains the same even if there is metastases to other area(s) of the body. So if your cancer has spread to your bladder, then it would remain ‘breast’ cancer. And no, you are not unique in having secondary cancer found in your bladder without there being a trace (now) in your breast, as the link I give below shows. What you have, certainly, is rare, as the article states, but there is a precedent for it.
This woman had breast cancer 3 years ago that was (then) grade 1 or 2 (not spread) and when, 3 years later, she began to experience other symptoms, the original site of her cancer, for which she had mascectomy, was found to be clear of cancer. Also, like you, this woman’s cancer seems to have bipassed her lymph nodes.
So whilst what you have is very rare, it isn’t unique.
http://jco.ascopubs.org/content/25/27/4308.full
I wish you strength in your fight against this illness.
Zola Hi,
Quote
And no, you are not unique in having secondary cancer found in your bladder without there being a trace (now) in your breast, as the link I give below shows.
Speaking on behalf of my wife at the moment, you quote (now) there is no( now) or (ever) Zola , the point being my wife has NEVER had cancer in the breast, the cancer only being found at first in her colon and stomach now spread to the area behind the bladder.
The case you mention the patient had a previous history of breast cancer, my wife has not. I believe reading her notes she has said this here on her blog.
There is not a woman known who has had breast cancer but not in the breast.UNTIL now that is.
Cancer has never been found in my wifes breasts.
I would like to make a point clear this is not a competition to prove my wife wrong NO ONE is jumping up and down saying I am unique , the case is very worrying because they do not know how to treat her.
Oncologists and her medical team have said her condition is the first of its kind ,my wife is only repeating what she has been told . My wife is not unique BUT her case IS which why it is in the Medical Journal.
With thanks also we know when cancer spreads to whatever part of her body it still remains breast cancer grade IV as tests have proven. I do not think either of us are ignorant to my wifes case and there is nothing we do not know about it.
AND it is unique.
Best wishes
Stephan
I ask you do not waste your time or mine sending links because you will not find one.
Invasive Lobular Carcinoma..Metastic breast cancer. (Not Found in the breast) I hope this is now made clear.
A nice day, My Dearest Punky girl and do not must loose Your smile.
Good morning, My Sweet Girl.
xxs+hug
There seems to be a few very unpleasant people around who cannot bear to be wrong. We seem to now have online ‘experts’ who know better than Danis doctors. I have no time to post their comments or even less to explain once again Dani’s condition to people who have no interest in her.
Stephan
Well, i am interesting about My Friend, My Dearest Friend Punky Girl.
Miss You.
I hope B. can say to You all days my few words. The usual.
xxs
Good Afternoon Stephan.
Sending my thoughts to you and Dani, and hoping that she will be home soon. Miss chatting by email, give her all my love and can’t wait to speak to her soon.
Take care and Dani, you are greatly missed, can’t wait to have you back with us… I think on that one I can speak for all your friends on many blogs and fourms. We miss you and we can’t wait to hear from you.
Sending you big hugs and speak soon my dear friend.
Bren
xx
A nice sleep, My Sweet and Dear Girl !
Like always, the best to You, My Punky Girl !
xxs+hug.
hearts+roses+stars
Miss You, My Dear!
xxs
Good morning, My Dear Sweet Punky Girl!
Keep the smile and i miss You.
xxs+hug.
Deuce
modnrodder.wordpress.com/
modrod@ymail.com
188.28.2.232
justathoughtyouknow.proboards.com/ind… 1
zola
zoakley61@aol.com
78.147.183.210
Sweet dreams to My Sweet Girl.
xxs
Maria don’t worry, Dani is fine.
Stephan
I visited this site to post a genuine message of goodwill and I come back to read.
I have no intention of contributing further to any insinuations that perceive my support given, without prejudice, as anything less than that.
I am genuinely saddened to have to use this comment facility on such a serious subject to object that my email address has been posted, here in a public blog, without my permission. However, posting my email address was my invitation to object.
There is nothing I would like better than to see this blog ignore the idiots who are successfully, it seems, diverting from the serious subject of enduring a cancer. Any worthy human being would feel compassion for those dealing with this struggle. There shouldn’t be conditions about who offers support to Dani, based on opinions differing on other topics. If there are such conditions then I have to ask the question; have you got your priorities right.
Positivity is the most powerful weapon against cancer. I don’t understand why effort is being wasted to turn positive messages of goodwill into a negative issue against certain posters who offered moral support and goodwill.
I would have expected this blog to deal with enduring and fighting cancer. No outside arguments should even come into it.
I hope this will be the last time this blog is used to make insinuations about other people and forum’s. If the police are dealing with the idiots because you don’t know who they are, then there is no need to insinuate to implicate. Just a need to carry on helping everyone reading to understand about dealing with cancer.
I once again pass on my support for Dani. I pray and hope that this cancer is beaten.
Adrian
For the record this is not a Madeleine blog so please stop sending your comments on the McCanns.
For the record I have no interest in the McCanns whatsoever or what they did to their kid.
For the record I am being sent by someone calling themselves Thought you should know.. comments from Just a thought you know poster named Bonni ? complaining my wife is discussing her cancer in public when folk on her forum are sick but remain silent. My wife was asked to go public a choice she made because the intent was to help others. The choice ,was not to become an attention seeker as suggested by this very spiteful person.
(Once again Dani has tried to help someone but has been kicked in the teeth for her efforts.)
This person Bonni seems to have a problem (in my opinion this person has many problems and needs help) as to why people talk about their cancer, or is her only concern in my wife and any excuse to stab her in the back? I say look around and many tell their story some have wonderful endings others sadly do not, those who are lucky to have the gift to express themselves with words write about their experience, it is a therapy and it helps .
Bonni and her spite suggest this blog is about my wife, my wife told her story because her case is unusual and if anyone out there maybe could take some comfort in her words. This blog is packed with information I had no idea existed I have spent the week reading my wifes blog and had no idea how much work she has done. I am very proud of her but the blog has been poisoned by evil intent which is a shame as there are those who have a deep interest in her work. Those being people who are suffering from cancer.
Dani, when first diagnosed needed someone to cling to, cancer is a lonely place to be , she found Patrick Swayze , there was a place for those who cared to send messages of support.
Would anyone believe I have received ,or rather Dani has received messages saying Swayze died from aids and was gay?
What kind of people are you to send such a comment , the man is dead he has a grieving widow and family.
I had decided to close this blog and delete all information while Dani remains in hospital but this would mean all Dani’s work would be for nothing. I decided then to open another blog for Dani, a private blog and have placed her private battle there and deleted it from here which is a shame because her story and the way she writes makes me proud of her . To the evil who now find their pleasure in posting here this will mean they have won, to me I am protecting my wife.
The rest of the blog stays for interest content.
Dani, when she comes home will no longer have access to her computer I am doing this for her own good she needs her energy , positive energy to fight. For you to continue posting your spite will mean you are talking to yourselves as Dani will not be reading you.
A comment I received and I have a good idea from whom telling me I cannot go to the Police for someone reading my wifes blog, this is very true but by placing the unpleasant sites who daily trawl my wifes blog and the comments being posted to me from this blog make me aware who the person is from Just a thought you know.
My lovely wife will be home next week and you can all carry on your Internet war amongst yourselves.
Who said this and who said,, that holds no interest for me you all know what you have done and what you have said.
Dani is no longer around so you will have to find another victim I am afraid.
Stephan
Message for Maria,
Maria I know you are concerned for Dani but I am taking good care of her.
Stephan.
MESSAGE for all those who care about my wife.
Deep gratitude , you all have much compassion and I am sure your thoughts and good wishes will help Dani.
God Bless
Stephan.
themachine.twilightlegend.com/lounge-… 3
Good morning Stephan!Good morning, My Sweet Punky Girl.
A nice day to You both.
Here is sunny and i am sleepy….. the Doctor (mine) imagine, do not give to me injections B12!!!!!
I was furious but the pills are very small (PERDOZE?) to people like me who not eat……. well. And hierro (ferro).
I was expecting the B12 injections to feel (or stay 20 years younger.LOL)
Thank You by the messages here. Thank You a lot!
I know she is in good hands, Yours.
( Message for Maria,
Maria I know you are concerned for Dani but I am taking good care of her.
Stephan.
and:
Maria don’t worry, Dani is fine.
Stephan )
To Stephan:
I hope that You do not mind about writing here by morning and night because i do that always even when she was green and come not here. But i left always my words to Her. To me, Dani is almost like a daughter. I hace one, 40 years old. A man.
Stephan: I hope that you , all days, do not stay ” mouth open”
because i wish ( is important to me ) come here twice a day,please!
( i do not know enough english and, this momente i use not goole translator. Dani was usual do not understand with my notenglish. After we laugh…… mis understanding.LOL )
The best to both but, like You,Stephan, can understand, to My Sweet Girl i wish all the best. I know You are caring her.
themachine.twilightlegend.com/lounge-… 2
pfa2.com/forum/ucp.php?i=pm&mode=view… 2
google.com/ 1
justathoughtyouknow.proboards.com/ind… 1
themachine.twilightlegend.com/lounge-… 3
The trawlers
Stephan
This was posted to my wife on the the evening the same day she had her chemo session, only a coward would hit a person at such a low point. A coward as Dani noticed did not have the balls to use the name she/he is known by. I think having seen who trawls here the most where this post came from and who is behind it , maybe you would like to work it out amongst yourselves.
Watching the Defectives
Are you on a mission to catalogue everything you have ever written about this case? That’s what it looks like, and tbh I wouldn’t waste the time. Your work is not based on reality, it’s poor stuff. Far too much theorising and not enough of anything approaching fact. And forget the newspapers fgs, they write trash, or hadn’t you noticed? Why bother with such stuff, let alone treat it as if it holds great ‘truths’?
Now, to the meat of the matter. Why do so many people think you are male, and why have you encouraged that belief? Why did you orginally post on this blog that you knew Ironside better than anyone so had allowed her to post? Why wait for an accolyte to ‘out’ you?
Why did you have little trouble contributing to the acres of nonsense written about the Madeleine affair, despite your illness, until you fell out with jackboot Morais?
And one last question – do you ever feel sorry for all the lies you have perpetuated and the libels you have thrown at a grieving family?
I guess I know the answer to that.
edit this on September 15, 2010 at 10:46 pm | Reply powersteph65
First and last time….BUT first question for you why are you all such cowards and only post under unknown nicks?
Like everything else you only play on the petty. It is no business of yours whether I am male or female .
You seem a very foolish person but then only a fool would believe the McCanns fairy tale.
My blog has been here for quite sometime …it had nothing to do with any TIMING…
To be frank I am surprised it took you this long to find it..the link has been on many blogs for months.
Your last question I have never seen grief and my only concern is what happened to Madeleine and not her money grabbing patents.
I told you this is not a place for Madeleine. If you think you can turn my blog into a sparring forum you are very much mistaken…Go back to your cesspit with this copy and`paste.
A nice night with a lot of stars on sky; roses and hearts
My Sweet Girl.
xxs+hug.
Sweet dreams and no to stress but always well.
A nice day, My Dear Girl!
Here i am with my black coffee. But a hot chocolate or cacau to You. More with hearts, hugs, roses and sunny shine.
All the best, My Sweet Girl.
a good morning slide with Beatles music.
Enjoy!
themachine.twilightlegend.com/lounge-… 8
The trawler who visits to JUST read
The ONLY link this Blogger and his cronies have any interest in is this one . No interest whatsoever in cancer.
Let me save you all the trouble
http://trunkintheloft.blogspot.com/
justathoughtyouknow.proboards.com/ind… 3
justathoughtyouknow.proboards.com/ind… 2
Good day Maria
Stephan
Good evening ? 16:55 Stephan.
My best wishes to D. ! Later i will come here, again, to give a kiss good night.
But, now i switch on and usually i come here if i see some about D.
Stephan:
I think is not necessay when you say someting to me about D.
to put the words to me
and links . Because what can think People ?
( the links even do not open and i do not know what is )
Boa tarde ! Buenas tardes. In english i do not know how is…..
The best to you and P. Girl !
A kiss to a nice night and my wishes with stars, moon, roses and hugs.
xxs My Sweet Girl.
All the best.
Just popped in to say will be thinking about you tomorrow. All my love and hope to see you back blogging soon. Sending you big hugs and kisses my dear friend xx
A nice day to You, My Sweet Girl !
I had with me a black coffe and a hot chocolate to You.
Keep smiling, please.
herats,roses,hugs,sunny shine.
hearts ( was wrong, sorry)
xxs
and a cacao also.
No news about You,My Sweet Girl .
I wish the best and that You can, with husband, keep the smile.
xxs+hug
Olá,Minha Querida.
Como seis que nem vens aqui, escrevo assim.
Ontem tive uma insónia e hoje de manhã quando aqui vim ver se havia notícias, estava tão ainda com tanto sono que falhei o usual:
sorriso,abraços,beijos,flores
o que mais necessitares.
Sabes que estarás sempre no meu coração e pensamentos.
Aqui,costuma-se dizer que não havendo notícias, elas são boas.
Esperemos que sim e que quem te quer bem possa saber como foi prometido.
beijos, Minha Menina Linda.
BONS AMIGOS
Abençoados os que possuem amigos, os que os têm sem pedir.
Porque amigo não se pede, não se compra, nem se vende.
Amigo a gente sente!
Benditos os que sofrem por amigos, os que falam com o olhar.
Porque amigo não se cala, não questiona, nem se rende.
Amigo a gente entende!
Benditos os que guardam amigos, os que entregam o ombro pra chorar.
Porque amigo sofre e chora.
Amigo não tem hora pra consolar!
Benditos sejam os amigos que acreditam na tua verdade ou te apontam a realidade.
Porque amigo é a direção.
Amigo é a base quando falta o chão!
Benditos sejam todos os amigos de raízes, verdadeiros.
Porque amigos são herdeiros da real sagacidade.
Ter amigos é a melhor cumplicidade!
Há pessoas que choram por saber que as rosas têm espinho,
Há outras que sorriem por saber que os espinhos têm rosas
Machado de Assis
e
Bom dia.
Desculpa, Minha Querida, não ter deixado as minhas palavras aqui,ontem.
Espero que mantenhas o sorriso e o Teu humor.
Saudades, xxs e hug.
Maria,
You set one very high standard for the word “friend”. If anything good can be said out of all this, is that Dani found, so many miles away, one true friend.
Love to you Maria
Love to you Dani. Miss you.
I miss her so much! And You are right Dani is a true friend.
Love to You also Text
and of course My Sweet Girl, to You i wish only the best.
I hope You can smile but i miss Your company, a LOT!
http://www.citador.pt/proverbios.php?sobre=Promessa&op=8&theme=208&firstrec=0
Mais vale não prometer do que prometer e faltar
Good afternoon Stephan, how is Dani, hope she is home and the Scan went OK. Could you pass on my love to her. Many thanks xx Bren
Bom dia, Minha Querida!
Que obtenhas sucesso na Tua ” Battle to survive”
salam alaykum
Que la paix soit toujours avec nous
Peace be with us always
A night kiss. Roses,hugs……………………
Be careful with fish, any fish from the sea. Must not forget the BP oil on Ocean.
A good morning kiss and i hope all the best to You,My Sweet Girl.
Be careful and take care.
xxs+hug
Hello,My Friend,hello!
A good night kiss to You, My Dearest Punky Girl.
The best always.
xxs+hug. Ah and a hot chocolate for You and to me a hot cacao .
Sweet dreams.
Hello,My Friend,hello!
A good day kiss to You,My Sweet Girl.
All the best and tea for You and a black coffee to me.
xxs
A good night kiss, My Dearest Girl!
stars, roses,smiles,hugs
The best.
Tea and a cacao.
i return, after feed the miausssssss
http://pt.wikipedia.org/wiki/R%C3%A3o_Kyao
Rão Kyao, nome artístico de João Maria Centeno Gorjão Jorge é um músico e compositor português, famoso como intérprete de flauta de bambu e de saxofone.
only pt and deutch
http://de.wikipedia.org/wiki/R%C3%A3o_Kyao
Maria,
You’re simply tireless. Dani will forever cherish your friendship.
Hello,My Friends,Hello!
Text. : my morning comment is not here……
My good day kiss ( i put morning, about 7A.M. and something,here…) My Dearest Punky Girl.
xxs
Hello My Sweet Friend, hello!
I wish the best to You so i please know you will always be in my heart.
Please, when you wish to give me news about you, please do, you know I’ll forever be grateful.
Until then, I’ll be waiting for the promised news. Love you.”
I will miss all this……..
xxs
I am breaking what i said yesterday.
I had problems with big iMAC and i am using a mini,mini computer. Now no net on MAC, so…………..
sometimes i use these,almost a mobile.
Sorry breaking what i say yestrday, only an explanation today.
The best!
2xxs:
for tonight
and
for tomorrow ( i will not come here morning)